Welcome to Zayden's Crusade Foundation Inc., formerly Zayden's Journey with Myotonic Dystrophy Type 1

Zayden's Crusade Foundation has officially been established. All state-mandated documentation has been duly submitted, and the 501(c)3 application has been completed. However, the submission to the IRS is pending due to the need to secure the $400 filing fee required for processing. At this stage, we are legally permitted to solicit contributions, though it is important to note that donations will not be tax-deductible until our 501(c)3 status is officially approved by the IRS. We are currently accepting donations through Zayden's GoFundMe account, accessible via the QR code provided in the image to the right, until we are also to build a Zayden's Foundation Nonprofit website that allows donations. We invite you to join us in our mission to create a meaningful impact within communities. By sharing Zayden's story, building connections with individuals in your community, and supporting essential services and programs, we can collectively address critical needs and foster positive change.

On December 10, 2025, Zayden bravely lost his battle with Congenital Myotonic Dystrophy Type 1. Despite his young age, he showed an extraordinary amount of courage, strength, and determination that continues to inspire us all. Zayden was a true warrior, achieving so much in his short but impactful life. He touched countless hearts, and we hope his story will continue to inspire and make a difference. Before his passing, we had begun planning a foundation in his honor — a mission we are committed to pursuing to carry on his legacy. 

About us

Welcome to our blog, where we share Zayden's personal journey with Myotonic Dystrophy Type 1. Our goal is to provide meaningful insights, resources, and support for individuals and families navigating life with this rare genetic disorder, which affects approximately 1 in 8,000 births. Together, we aim to foster a compassionate community, raise awareness, and advocate for increased research and understanding.